cerebrospinal fluid leak / chiari malformation / chronic disease / chronic illness / chronically ill / CSF / CSF leak / fibromyalgia / Lupus / migraine / raynaud phenomenon / raynaud's / systemic lupus erythematosus Posted on:

Must Love Lupus

If I were single, how could I possible find a grain of energy to date someone? My nature is to remain reticence where I am safe. But the desire to find a companion might catapult me off the couch and onto the computer, searching for love despite my lupus and chronic illnesses.

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chronic disease / chronic illness / fibromyalgia / Lupus / lupus anxiety / lupus awareness / lupus depression / Lupus flare / lupus handicap / lupus help / lupus hospital / lupus loop / medication / meditation / men with lupus / migraine / pain management / patient advocate / raynaud phenomenon / raynaud's Posted on:

When Lupus Throws You for a Loop

Hopefully, one day there will be a cure for lupus and the lupus loop will dissolve forever. Until then, please hold onto hope with me, & let lupus loop-us.

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chronic illness / depression / fibromyalgia / Lupus / lupus anxiety / lupus depression / Lupus support / medication / migraine / pain medication / Patient / patient advocate / raynaud's / rheumatologist / SLE / systemic lupus erythematosus / Uncategorized Posted on:

Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs

While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.

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