My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.
Lupus Medications are my Chronic Illness Reality
My psychologist wants to wean me off of my anxiety medications. Fine, super, go ahead. […]
Lupus is Making Me Crazy!
When I was diagnosed with lupus, I declared, “I have lupus. I’m not crazy.” But […]
Glittery Snow Makes Purple Lupus Toes – Raynaud’s Phenomenon
A couple of days after a snow fall, I love seeing a field of undisturbed snow, warming under a radiant sun, glittering enchantingly. As I bask in the beauty of the white, bedazzled landscape, my toes recoil deep into their wool sacks (socks).