This blog began with the intention of sharing my experience of living with lupus, hoping […]
Lupus Complications Keep Me On A Hamster Wheel
I apologize for my lengthy leave of absence on my blog. There has been dissention in my body – lupus complications plague me. I’m running on a lupus hamster wheel (and not losing any weight in the process – thank you very much).
When Lupus Throws You for a Loop
Hopefully, one day there will be a cure for lupus and the lupus loop will dissolve forever. Until then, please hold onto hope with me, & let lupus loop-us.
Men Can Have Lupus Too
My 2nd guest writer is a wife whose husband has lupus. She shares their emotionally moving journey that led to his diagnosis. While lupus effects mostly women, it’s important to know and spread the word that men can have lupus too.
Put on Your Power Suit, We’re Going to Court, Lupus Handicap Court
I entered the courthouse, filed into the mandatory security screening. Then I was shocked silent from the verbal brutality. (It is my private business that I have a lupus handicap.)
Lupus, CSF Leak, Chiari – Oh MY!
My choices were rather simple and straight forward: 1. undergo brain surgery, or 2. risk potential paralysis
I’m on the Top 30 Lupus Blogs…”Say What?”
I received an email announcing that my blog was chosen as one of the top 30 lupus blogs. Feeling dumbfounded is an understatement. You could have knocked me over with a feather (as one of my friends says).
I Love Lupus! You Read it Right – The Benefits of Lupus
I woke up with a romantic notion, feeling dared to find ways in which having lupus is not always a bad thing. Surely somewhere in this, or any chronic disease, there has to be a tiny bit of positivity.
How can I help You With Your Lupus?
My vision is a place where people with chronic illnesses can own homes and live among fellow spoonies. A spoonie community. A spoonity.
Dear Doctor, You’re Fired! – When it’s Time to Change Lupus Docs
While no individual physician may meet all of our health needs, or have exhaustive knowledge on any specific disease, that should not excuse doctors from failing to provide care to the point where it may be detrimental to our well-being.